If Crohn’s Disease don’t getcha, the drugs or the side effects will
Recently, I tweeted via @HospitalPatient: Battling Crohn’s Disease is like trying 2 survive “The Perfect Storm” in a Raft. If the Disease don’t getcha’, the drugs or the side effects will! The Tweet...
View ArticlePartnership with Patients Summit &“Humira” position
Thanks to being awarded a “Travel Scholarship” from the Society for Participatory Medicine based on my contributions to the world of Health Care Social Media, I will be attending the “Partnership with...
View ArticleAnnouncing “Crohn’s Disease Warrior Patrol”
In one of my favorite “West Wing” episodes, (Season 2, December 20, 2000, “32 Noël”), the White House Chief of Staff character Leo McGarry (played by the late John Spencer) tells White House Deputy...
View Article“Crohn’s Disease Warrior Patrol” (“CDWP”) T-shirts NOW Available FOR Purchase!
While the formal Medstartr.com “CDWP” T-shirt Fundraising Campaign won’t start until next week (i.e., approx. Monday, February 18, 2013), you can purchase these beautiful CDWP T-shirts NOW for $25.00...
View ArticleCrohn’s Disease, Humira, FDA, Respiratory Problems &“BOOP”
What Exit in New Jersey are you from? This picture of MY ROOM IN THE EMERGENCY ROOM (”ER”), taken by me on Tuesday, March 26, 2013, from a New Jersey Hospital’s Emergency Room (“ER”), was demanded to...
View ArticleCrohn’s Disease & Use of Biologics Drugs like Remicade, Humira & Cimzia
In my 30 years with Crohn’s Disease, I am asked more about taking these “Biologic” drugs than any other aspect of the disease. I imagine that’s a good sign because it means the conversation is turning...
View ArticleCrohn’s Disease, Chemotherapy &“Humira”
Where Have I Been? It’s been a while since I’ve “blogged.” I don’t like to share my thoughts with the world when I am depressed nor do I share them about my “day-to-day” unless they involve something...
View Article“Top-down” v “Bottom-up” Inflammatory Bowel Disease Treatments
This is Video 4 of 8 from my September 15, 2014 interview w/ Dr. Mark L. Chapman and focuses on the current contrasting styles of treating Inflammatory Bowel Diseases, i.e., “Top-down” v. “Bottom-up.”...
View ArticleHow Anti-TNF Biologic agents treat Crohn’s Disease & Ulcerative Colitis
I recently posted this on Facebook as a “layperson’s” answer to someone with Inflammatory Bowel Disease (IBD) who asked if Anti-TNF drugs are basically analogous to chemotherapy and people seemed to...
View ArticleMy IBD British Brethren in London
Dear London-based IBDers: I will be staying in a downtown London hotel from June 7th to June 10th and if you are interested in being interviewed for a Documentary my non-profit is producing on...
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